Thursday, May 1, 2014

Day +2 Post Transplant

This is really the dialing in phase.

So many drugs at doses that will need to be adjusted one day at a time.  The graft vs host (gvh)drugs being the biggest initial adjustments.  The 2 GVH drugs that began last weekend, pre transplant, started some minor twitches that became mild to moderate tremors.  As they have reduced the dosages, the symptoms have improved, they are still there but at a much lessor frequency & strength.

Last night and today were not necessarily days of rest.  Clif is in need of pain medication again to help ease the discomfort of his burning urination, lower abdominal cramping and other creative things that I will leave to your imagination.  Pain relief is given very liberally at this point of treatment.  The chemo really takes a toll on the gastrointestinal system.

Clif has been in bed all day, no walks today.  Tired, pain and no energy.  He continues to need platelets, but.......his hemoglobin for the past 2 days has been 9.5 which has not required a blood transfusion. His white blood cell (WBC) count is 0.1 (neutropenic), which we are told to expect this for another couple of weeks.  His platelets are also very low at 11, so he still needs platelets.

His desire to eat has lessened significantly.  Cream of Wheat seems to be a favorite right now, as well as PB&J sandwiches and misc. soups and crackers with peanut butter.  Dairy is not friendly to the gastrointestinal track either, good bye cereal for awhile.  Clif has not drank a diet coke in over 3 months, and I don't think he misses it.  Water has pretty much been his only drink.

Thank you for your constant encouragement, prayers and donations of blood and platelets.

“Who of you by worrying can add a single hour to his life? Since you cannot do this very little thing, why do you worry about the rest?”
LUKE 12 : 25 – 26”


6 comments:

  1. Hang in there Ciff. You have a lot of brothers pulling for you and sending many positive thoughts and prayers your way.
    Beat this cancer Brother.
    In Hoc Signo Vinces.
    Greg White

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  2. Such a brave man and such a GREAT woman to stand by him in sickness and in health! God bless your walk! We love you.

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  3. God has indeed given you faith for the long haul!! Thankfully, HE does the carrying! I am praying for continued grace for your every need!!
    Love in Jesus!

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  4. Stay strong Clif, I can't imagine what a battle the recent chemo and the subsequent transplant have brought to you at this stage, however you have a great family and support group around you. Know that there are a lot of Sigma Chi's thinking about you and providing another avenue of strength to draw from. In Hoc Signo Vinces, Tom Zylstra

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  5. We are continuing with our prayers they have not stopped. You will beat this, you are strong. We love you all so very much.

    Love,
    Aunt Nancy and Uncle Ralph

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