Day +44 Post Transplant, Saran Wrap & Relocation

On Wednesday of this week, for the first time in over 45 days, Clif with assistance was seated in a wheel chair and we went out to the lobby and sat and talked for an hour.  Being free from his room of white walls and a view of the roof tops of the neighboring medical bldgs, we enjoyed the view from the 4th floor lobby.  It was pleasant!

Tonight (Thursday) before bedtime, Clifs body was wrapped in Saran Wrap!  Today, a dermotologist was inspecting the rash that has developed over his entire body, the treatment; two different creams and wrap him in that plastic wrap you use to keep your foods fresh.  For the next three days, Clif will undergo a very creative method to help heal the skin and prevent scarring and itching.  The wrapping will be changed 3x a day, yes he will sleep in it, he will rehab in it and pretty much most of the time be sealed tight from exposure to whatever.....I am certain some really great jokes will arise from this.

We have also been relocated back to the 6th floor!  Since telemetry (heart monitoring) is no longer necessary he was moved back to the transplant floor.  This is the 9th room we have had since the beginning of our stay.

Clif is eating very well, getting PT Rehab 2x a day and overrall feeling pretty good.  The intestinal bacteria he has been fighting since transplant has tested negative twice now, one more test will be performed or is possibly in the works and if it tests negative he will be considered clear.

Many meds have been removed, he is regaining strength and we continue to have great hope for a full recovery.  

This picture was taken last week before the rash and swelling.  A good visit with business partner Dave Newton!

Graduation for our son Charlie is next week, not sure what that holds for Clif.  One of his nurses, Sobha who I spoke of months ago, she was the one who informed us of our 10 point match, she has become a very dear treasure.  She has offered to ride along to graduation and care for Clif should he need any medical assistance while parked on the field at the graduation ceremony!  Still holding loosely but praying continuously that this might be a field trip that he can take.

Talk of near future rehab and what that might look like outside the walls of COH is in the works, will keep you posted.  

Let us continue to haggle with God for his mercy and healing for Clif.   

“Be joyful always; pray continually; give thanks in all circumstances, for this is God’s will for you in Christ Jesus.”

1 Thessalonians 5:16-18