Friday, September 5, 2014
Day +130, The Battle Continues.........
Blessed are all who wait for Him. Isaiah 30:18
In our last update we shared an upper/lower GI was being performed to hopefully shed light on why Clif was having a large degree of stomach cramping, abodmenal distention (again) and plumbing issues. The findings were nothing. There has been a great degree of mystery the last 2 weeks but today we feel a new discovery was made.
Dr Ali, one of our "Team 5" of oncology/transplant doctors shared a new word; Serositis. He explained this was a manifestation of GVH. Serositis is the medical term for an inflammation of the lining of the lungs, heart, or abdomen and abdominal organs. In a nutshell, Clif is accumulating fluids again around these areas. The treatment; marketly increased steroids over the next 3 days and administer a new drug called Rituximab (Rituxin) delivered once a week via IV for the next 4 weeks. Prayerfully this issue will not slow his progress made with Physical Therapy.
Today, he was introduced to the Viking Lift (see picture below), a piece of equipment with wheels and a sort of Jumpy harness that allows Clif to walk with a walker but be a little lighter on his feet. It continues to require 2 assistants but definitely gives a more liberating feel to the art of walking. Yes, it is much like the jumpy swing we all used with our babies, only it is not stationary this one travels.
“I wait for the LORD, my soul waits,
and in his word I put my hope.”
at 6:46 PM